DandyKids083108.mp4

FESCH.TV INFORMIERT:

One boys Aunt travel’s across the country in search of of what it means to live with the many faces of Dandy Walker Syndrome, and how she can help those receiving a death sentence diagnosis to look for answers.
This was shot in 2008 on various formats with little or no money and it tells profound information from families whose children were affected by Dandy Walker Syndrome and scientist, and Dr. Ben Carson of Johns Hopkins with support of Congress.
My nephew Hunter is 24 and graduating from College now and many of these children are teenagers and young adults .I hope it inspires and helps you to ask questions and to advocate for your loved ones.
Thank you Darla Rae-Hunter’s Aunt.